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Condition-specific Resources

  1. Achondroplasia
  2. Acid Sphingomyelinase Deficiency
  3. Alzheimer's Disease
  4. Amyotrophic Lateral Sclerosis
  5. Breast Cancer
  6. Congenital Adrenal Hyperplasia
  7. Duchenne Muscular Dystrophy
  8. Hemophilia
  9. Huntington's Disease
  10. IgA Nephropathy
  11. Irritable Bowel Syndrome
  12. Kidney Disease
  13. Kidney Disease (IgAN-specific)
  14. Lupus Nephritis
  15. Multiple Sclerosis
  16. Myasthenia Gravis
  17. Parkinson's Disease
  18. Paroxysmal Nocturnal Hemoglobinuria
  19. Primary Biliary Cholangitis
  20. Rare Disease
  21. Sickle Cell Disease

12:12 Foundation

The 12:12 Foundation is a nonprofit organization committed to supporting and advocating for individuals and families affected by Sickle Cell Disease (SCD). Through education, outreach, and community engagement, the foundation works to enhance the quality of life for those living with SCD and raises awareness about the disease's impact on affected individuals and their communities.

Learn more about the 12:12 Foundation

AAMDS

The Aplastic Anemia & MDS International Foundation is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world.

Learn more about AAMDS

Advancing Sickle Cell Advocacy Project (ASAP)

Founded in 2015, A.S.A.P. is a nonprofit organization dedicated to changing the narrative around Sickle Cell Disease through raising awareness, community education, and effective advocacy for those affected by the condition.

Learn more about ASAP

Alzheimer's Association

The Alzheimer's Association provides national and local care and support for those affected by Alzheimer's and other dementias, advocates for Alzheimer's research and care initiatives, and is the largest nonprofit funder of Alzheimer's research. They are dedicated to advancing research for treatment, prevention, and a cure.

Learn more about Alzheimer's Association

Help 4 HD

Help 4 HD is dedicated to educating the world about Huntington's disease and Juvenile Huntington's disease while providing essential information, resources, and support to underserved communities.

Learn more about Help 4 HD

National Alliance for Caregiving

The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one.

Learn more about the National Alliance for Caregiving

Parkinson's Foundation

The Parkinson's Foundation is dedicated to improving the lives of individuals living with Parkinson's disease. They focus on research, education, and advocacy to provide support, resources, and hope to those affected by this neurodegenerative disorder, while actively working towards finding better treatments and ultimately a cure.

Learn more about Parkinson's Foundation

Supplemental Nutrition Assistance Program (SNAP)

To get SNAP benefits, you must apply in the state in which you currently live and you must meet certain requirements, including resource and income limits.

Learn more about SNAP

National Kidney Foundation

The National Kidney Foundation is revolutionizing the fight to save lives by eliminating preventable kidney disease, accelerating innovation for the dignity of the patient experience, and dismantling structural inequities in kidney care, dialysis, and transplantation.

Learn more about the National Kidney Foundation