Change the future for the CAH community and get your medical records at your fingertips.

We make it easy for you to organize your medical records while contributing to important research for Congenital Adrenal Hyperplasia (CAH). You’ll earn $50 for joining once you qualify, with the option to participate in additional compensated surveys.

Join the CAHtalog® Registry

Who is eligible to join?

Adults living with Classic CAH or caregivers of children living with Classic CAH who receive medical care in the U.S.

How does the CAHtalog® Registry work?

Sign up in just ten minutes—PicnicHealth takes care of the rest.

You'll answer a few quick questions, including the names of your current or most recent primary care physician (PCP) and endocrinologist, and sign a short consent form so we can gather your medical records and add you to the registry.

Questions? Issues signing up? Email help@picnichealth.com anytime for a rapid response.

Sign up online in less than 10 minutes

Empower yourself with your medical records organized into one simple app

CAHtalog® is a collaborative effort

Neurocrine Biosciences is a leading neuroscience-focused, biopharmaceutical company with a simple purpose: to relieve suffering for people with great needs. As the registry sponsor, Neurocrine Biosciences leads the CAHtalog® study design & analysis and provides funding for the registry.

CARES Foundation leads in the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education, and research.

PicnicHealth is CAHtalog®’s trusted technology partner to securely collect and organize your medical records—for you and for researchers.

Help turn early patterns into real breakthroughs!

Our early results are exciting, but we need more CAHtalog® participants to uncover greater insights with more robust statistics. Your medical records can help advance CAH research, including:

• Quantify the impact of steroids & elevated androgens on people with CAH
• Generate key data to help clinicians better treat CAH
• Help society recognize the importance of CAH

Participation in other CAH registries is encouraged!

CAHtalog® collects extensive medical records, while other registries focus on in-person visits and lab tests. Each registry helps answer different research questions - and together, they give researchers the information they need to see the full picture of CAH.

Your medical records, simplified

PicnicHealth organizes your medical records from nearly all your providers, giving you a clear and interactive view of your health history.

Easily track your lab values, medications, images, and doctor’s notes—all from your electronic device.

Share records seamlessly

With PicnicHealth, securely share your medical records with trusted loved ones or doctors. Share by email, text, or direct link while staying in control of who sees your records.

If you need emergency care while traveling, ER doctors often can’t access your records—but with PicnicHealth, you can instantly share your records from your phone. With CAH, having your full medical history on hand can make all the difference in getting the right care—wherever you are, when you need it.

Voices of the Classic CAH Community

Explore personal journeys, insights, and resilience within the CAH community through our blog posts.

Dina Matos CARES Executive Director:

“CAH researchers need to understand our real-life experiences from the diverse voices in our community. The CAHtalog® registry is a meaningful way to contribute that experience to research and help inform future care and treatments for CAH patients.”

FAQs

Who can sign up for CAHtalog? Anyone who has been diagnosed with classic congenital adrenal hyperplasia (CAH) and lives in the U.S. is eligible to participate, including both adults and children with classic CAH.

What is a disease registry? A disease registry is a standardized collection (database) of information about individuals with a specific diagnosis or condition.

Is this a clinical trial? This is not a clinical trial.

What does PicnicHealth do?
PicnicHealth works directly with people to help collect and manage your medical records, transforming them into a digital Timeline that makes it easier to find what you’re looking for.

What kinds of medical records do you collect?
PicnicHealth will collect medical records from all the doctors, hospitals, and clinics that you tell us about.