Taylor Nolen | CAH Change Champion
Taylor Nolen
I'm Taylor Nolen, a proud resident of a quaint small town in Georgia. My world revolves around my loving husband, Brett, and our three incredible children: Landon, Harper, and Maddox. When we're not entrenched in the hustle of school and work, you'll find us embarking on adventures, soaking up the sun at the lake, or cozying up for family movie nights.
Professionally, I'm a dedicated Sourcing Specialist, but my heart truly belongs to advocating for my youngest son, Maddox, who bravely battles Salt Wasting Congenital Adrenal Hyperplasia, a rare genetic disorder. In my downtime, I channel my energy into finding ways to raise awareness and support for Maddox and others facing similar challenges.
Through my blog, I aim to share our family's journey, shedding light on the highs, lows, and everything in between. My hope is that by sharing our story, I can offer comfort, inspiration, and valuable insights to others navigating similar paths. Join me as we embark on this journey together, spreading awareness, fostering understanding, and lending a helping hand wherever it's needed.
Connect with Taylor
Prepared for the 2 Percent
Marc’s journey with CAH shows his strength, family support, and how he overcomes challenges every day.
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.