Allie Schmidt
Allie Schmidt
Allie has been part of the ALS community for over six years, not only as a patient, but as a champion for those struggling with ALS and other disabilities. She has a passion for providing support to those who feel isolated, afraid, or overwhelmed. In addition to being an advocate for ALS and disability rights, Allie is a loving wife and mother.
Allie believes in participating in ALS research because it is “important to me, because it gives me hope for my future. I’m confident that we will one day find an effective treatment and put it into this tragic disease...but until then, we must keep fighting.” As a Change Champion, her hope is “to play a small part in finding a cure by working together with companies like PicnicHealth.”
Thank you Allie for all you do for the ALS community and beyond! You can learn more about Allie's work and follow her journey at @disabilitydame
Connect with Allie
Prepared for the 2 Percent
Marc’s journey with CAH shows his strength, family support, and how he overcomes challenges every day.
Maddox's Journey: Love, Challenges, and Advocacy in the World of CAH
Walking through life with salt-wasting congenital adrenal hyperplasia (CAH) brings its own set of ups and downs. For Taylor and her son, Maddox, it’s a path marked by sudden storms and sunny days, a mix of medical emergencies and moments of pure childhood joy. Here’s their story, told with the warmth and honesty that Taylor brings to every conversation.
Making a Difference: A Closer Look at Rare Patient Voice's Role in Research
In celebration of Rare Disease Month, we are thrilled to shine a spotlight on Change Champions, dedicated partners, and organizations making a lasting impact on rare disease research throughout the year. At the forefront of this movement is Rare Patient Voice, a remarkable resource founded with a singular mission – to provide patients and family caregivers a platform to be heard by actively participating in diverse research endeavors, including rare diseases.