# Your role in research starts here

**Enrolling**  
**Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP)**  
The NAVIGATE-CIDP Study looks at how CIDP affects a person’s daily life, based on symptoms and quality-of-life surveys. It also tracks treatment patterns—like why people switch medications—and builds a foundation for future research.

**Activities**  
- Medical Record Review  
- Surveys

**Enrolling**  
**Systemic lupus erythematosus (SLE)**  
The BEACON-SLE Study is a real-world non-interventional research study that looks at the experiences of people with systemic lupus erythematosus (SLE) and how they respond to treatment with Benlysta® (belimumab) in real life.

**Activities**  
- Medical Record Review  
- Virtual Assessments  
- Surveys

**Enrolling**  
**Neuromyelitis optica spectrum disorder (NMOSD)**  
The OBSERVE-NMO Study is a real-world observational research study that looks at the experiences of people with NMOSD who take UPLIZNA® (inebilizumab-cdon) to improve future care.

**Activities**  
- Medical Record Review

**Enrolling**  
**Friedreich’s ataxia**  
The ARIES (Assessing Real-World Experiences on SKYCLARYS®) Study will help researchers better understand how omaveloxolone works in people living with Friedreich’s ataxia.

**Activities**  
- Medical Record Review  
- Surveys  
- Device Connections

**Enrolling**  
**Stage 2 Type 1 Diabetes**  
The Tepli-QUEST Study is a real-world observational research study that looks at the experiences of people with Stage 2 type 1 diabetes (T1D) who have received teplizumab compared to those who have not.

**Activities**  
- Medical Record Review  
- Surveys  
- Device Connections

**Enrolling**  
**Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)**  
The ORBIT-CIDP study collects real-world data to better understand CIDP, including condition progression, treatment effectiveness, and patient experiences.

**Activities**  
- Medical Record Review  
- Smart Insoles (Optional)  
- Surveys  
- Virtual Assessments

**Enrolling**  
**Achondroplasia**  
VISTA is an observational study designed to create a holistic picture of the achondroplasia journey for children – including quality of life and care.

**Activities**  
- Medical Record Review  
- Surveys

**Enrolling**  
**Transthyretin-Mediated Amyloidosis (ATTR)**  
The OPUS-W registry combines anonymized data from patients with ATTR taking WAINUA™ to gain a clearer picture of their daily life.

**Activities**  
- Medical Record Review  
- Surveys

**Enrolling**  
**Paroxysmal Nocturnal Hemoglobinuria (PNH)**  
The PLEDGE Study is an observational research effort to gather insight into the day-to-day lives of individuals who recently initiated danicopan to manage PNH.

**Activities**  
- Medical Record Review

**Enrolling**  
**Congenital Adrenal Hyperplasia (CAH)**  
CAHtalog’s mission is to advance CAH clinical research and in turn improve the quality of life for those living with classic CAH.

**Activities**  
- Medical Record Review  
- Surveys

**Enrolling**  
**CAR-T Cell Therapy**  
This study will follow your health over time to better understand the long-term effects and outcomes after receiving gene-modified T-cell therapy.

**Activities**  
- Medical Record Review

**Enrolling**  
**Acid Sphingomyelinase Deficiency**  
This study is hoping to understand how ASMD progresses over time, as well as how the disease is actually managed and treated in the real world.

**Activities**  
- Medical Record Review  
- Surveys

## Don’t see your condition?
If you’d like, you can still create a PicnicHealth account and we’ll let you know about relevant opportunities in the future.

## We’re stronger together
By combining the medical histories of large numbers of real people, in the real world, researchers can identify trends that don’t appear in surveys or clinical trials. And, you get a free PicnicHealth account when you enroll in a study.